Information on Living with a Serious Illness
There is a wealth of information available for people living with serious illness and for their caregivers and loved ones. The following are some Web resources you may wish to read.
Websites
MACRA National Coalition for Hospice and Palliative Care
Palliative Care Quality Measures Project
Pediatric Palliative Care Taskforce
Dedicated to ensuring all children with life-threatening conditions have access to the care and emotional support they need to live life as fully as possible
Caring Connections
The National Hospice and Palliative Medicine Organization's patient website.
GetPalliativeCare.org
The Center to Advance Palliative Care's patient website.
Palliative Care in Cancer
Provides free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.
National Healthcare Decisions Day
An organization that exists to inspire, educate, and empower the public and providers about the importance of advance care planning. National Healthcare Decisions Day encourages patients to express their wishes regarding their healthcare and urges providers and facilities to respect those wishes.
Prepare for Your Care
This site helps people learn about and prepare for medical decision making. It includes written pamphlets as well as Toolkits.
The Centers for Medicare & Medicaid Service has created
- a webpage with information about the Medicare hospice benefit, including: who's eligible for hospice, what services are included, how to find a hospice, and where to get more information
- an educational video: Medicare and You: Hospice.
