Information on Living with a Serious Illness
There is a wealth of information available for people living with serious illness and for their caregivers and loved ones. The following are some Web resources you may wish to read.
The Center to Advance Palliative Care's patient website
Read AAHPM’s “Five Things Physicians and Patients Should Question about Hospice and Palliative Medicine.”
Provides free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.
The National Hospice and Palliative Medicine Organization's patient website
Dedicated to ensuring all children with life-threatening conditions have access to the care and emotional support they need to live life as fully as possible.
A leading nonprofit organization committed to helping everyone across the nation have the best death possible through protected and expanded options at the end of life. This website offers free consultations, planning resources, referrals, and guidance.
An organization that exists to inspire, educate, and empower the public and providers about the importance of advance care planning. National Healthcare Decisions Day encourages patients to express their wishes regarding their healthcare and urges providers and facilities to respect those wishes.
This site helps people learn about and prepare for medical decision making. It includes written pamphlets as well as Toolkis.
With the help of physicians from AAHPM, Consumer Reports has prepared this piece to help patients and families better understand how palliative care can support you at any time during your serious illness.
When you have a serious illness or health problem, you may need palliative care. Palliative care is special health care that can ease pain and other symptoms and side effects from your illness or treatment. It can help you and your family cope with your illness, as well as emotional, practical, and spiritual concerns.
"Advanced Cancer Care Planning: What Patients and Families Need to Know About Their Choices When Facing Serious Illness”
Produced by the American Society of Clinical Oncology
The National Institute on Aging has produced a comprehensive 68-page booklet titled "End-of-Life: Helping With Comfort and Care." This free booklet was created to help people make sound health care decisions and get the care they would want for themselves or their family members. Obtain up to 10 free copies via web or call 800.222.2225.
This brochure is designed to introduce the specialty of hospice and palliative medicine to other medical professionals. Offering a general look into the many functions and talents of hospice and palliative care specialists and case examples of scenarios appropriate for referral. Produced by AAHPM.
The Centers for Medicare & Medicaid Service have provided an official government booklet about Medicare hospice benefits that includes who's eligible for hospice, what services are included, how to find a hospice, and where to get more information.